Our 4th of July Fun🇺🇸

Good Afternoon 🌞

Phew it is a hot one here today. Chloe and I have stayed in all day. We have snuggled up and watched a few movies and now she’s playing in her room. Yesterday we enjoyed the 4th of July.

We started out our day at my parents swimming.

It got hot so fast. She seemed to do well being in the water, but I started feeling nauseous and after about 1 1/2 hrs it was time to go in. She played with my parents dogs and watched a little Puppy Dog Pals before we headed home.

Chloe and I usually made a red, white and blue dessert of some kind, but she didn’t want to, so I made some Rice Krispie Treats. She wouldn’t try them and then asked me hours later for firework cookies. I told her I didn’t have the stuff to make them because she said she didn’t want to make them. She didn’t get mad, which was great.

Her favorite thing is watching the Fireworks. I was going to drive to town, where they were having a fireworks show at the college. I happened to notice that my neighbors one building over were setting up fireworks. I decided we would stay in and watch from our window.

She loved it❤️ They had tons of fireworks going off! We watched from the comfort of our nice, cool living room. She watched until 11 pm and then walked to her bed and fell asleep. I loved seeing her smile and hearing her say “Whoa and Yay”!! We also watched Capital Fourth on our local KET channel. There was lots of music and fireworks on there as well😊

We have been sleepy today and took a few mini naps, but it is worth being sleepy seeing her have fun.

What did you do for the 4th? Share below. I pray all of you are doing well😊

Keeping Myself Organized

Good morning 😀

As each day of the week has filled up with therapy sessions I knew I needed an organizer. I had a small calendar organizer, but knew this required something bigger! I had an extra notebook and binder, so I just made my own.

I made sections for each day, leaving room for therapy sessions, doctor appointments and other obligations. I used a different color highlighter for each appointment. Im very visual and forgetful (Lol), so I need all the help I can get😂. So far it is working very well.

I turned the small counter in my kitchen into my mini office desk. I keep my appointment book and budget book there. Once school begins I want to stay organized and not overwhelmed.

All of the busyness is worth it. Chloe lights up going into every therapy session. I love seeing her smile😊

I hope all of you have a safe 4th of July🇺🇸

Using Visual Schedules

Good morning☺️

Visual schedules are extremely useful when working with your child with Autism. I have used different methods with Chloe over the years. I have used picture schedules, as well as written ones. She typically takes to them pretty well. Her new therapists have been talking to me about implementing specific schedules to help her learn certain tasks, like dressing herself.

Her Occupational Therapist is currently making Chloe some getting dressed picture cards with clothing showing which way tags go. This is something she doesn’t understand. Chloe knows the process in which to put on her clothes, but she will put them on backwards or inside out at times😁 I am looking forward to using this dressing chart with her.

As we are getting busier with therapies I decided it would be a good idea to have a daily schedule posted. Each day is very different now. So to ease her anxiety and to let her know this is what I am doing today…..I’m going to make a daily schedule for her. I am hoping this helps make her feel calmer and secure.

Once I receive Chloe’s dressing chart from her therapist I will share that with you. Do any of you use visual schedules with your children? Please share below ☺️

I hope everyone is healthy and well❤️

Physical Therapy

Yesterday was Chloe’s first Physical Therapy Session. She has needed this for years and I am thankful she finally got it!

Her therapist is very gifted and knowledgeable about toe walking, which is Chloe’s issue. She has toe walked for 7 years. Each Dr and therapist seemed to think she would outgrow it, but she hasn’t. Now she has major balance issues. So the therapist and I discussed things she is doing there and what I can copy at home to further her therapy.

The first thing I will need is a ramp. My Dad is going to build one for Chloe that I can easily store under her bed. When Chloe walks on a ramp she must walk flat footed (normal footing). No toe walking. This will stretch those calf, ankle and foot muscles.

Next I need a foam pad. Chloe will walk more flat footed on a squishy surface. They are not sure why, but it will help again to stretch all those lower leg and foot muscles .

One last item I will eventually purchase is a small trampoline. You have to be really careful with these. When Chloe was little she fell off one and dislocated her elbow. So it will be put away unless I am right there with her to use it. The trampoline makes her jump flat footed. She loves to jump!!

So those are 3 tools the therapist and I will use to work on Chloe’s lower leg and foot muscles to improve her toe walking. Still working on an appointment for leg splints and braces.

I hope everyone is well😄

Use Up What You Have

I was one of the worst about using 3/4 a bottle of shampoo, getting bored with it, and buying a different brand. I would put the unused portion of the old shampoo in the closet. I may or may not return to it. WHAT A WASTE!!

Since moving I have made it a goal to use up everything I have before buying new or more of that product. It’s been awhile since I have purchased many products! I feel terrible about how much I have wasted over the years.

I’m mainly talking about health and beauty products and cleaning supplies. I make my own cleaners now, so I occasionally buy vinegar, baking soda and orange essential oil. I was the worst with shampoo and conditioner. I would buy a set and then get tired of the smell or I would see a different brand and buy it. Now I’m using up everything, no matter what!!

This waste can roll over into food as well. I buy lots of produce. I never know from one week to the next what Chloe is going to eat. So if I notice the strawberries are getting ripe and she doesn’t want them I freeze them for smoothies. I’ve been buying less of what I think may go bad. I’ll buy 1 zucchini or 1 squash instead of 3 of each. I know I will use 1, but not always 3. I sometimes take extra fruit to my parents if I see it’s no going to get eaten.

My goal is to waste less and spend less. How do you handle waste in your home?

I hope all of you are healthy and doing well😁

Separation Anxiety

Good morning ☺️

Today I want to post about separation anxiety and Autism. It is something most of us parents of children with Autism deal with. Chloe has always been very attached to me. It makes it quite difficult when she has to be away from me for a longer length of time. I do regret not having her stay with relatives or friends more often when she was younger.

When we first moved home she started public school and was doing well. I knew it would help her work on her separation anxiety issues, but alas in comes Covid-19 and we are home again. I occasionally have her stay with her older sister Mattie while I run errands or go to a Drs appointment. She does very well with her and rarely asks for me. I do need to find other babysitters, since I can’t always expect Mattie to watch her.

Separation anxiety is something toddlers deal with. They have to learn that their parents are returning when they leave. Children with Autism have a more difficult time understanding this concept. I think they have so much going on in their heads and bodies it’s just hard to calm themselves and they need their Mom or Dad or whoever cares for them to help calm them.

It is definitely a hard area of development to work on. All I can do is have her stay with others for short spurts and occasionally for longer times to work on it. Once school begins again that will help as well. I am working on a social story for her right now about it.

Does your child struggle with separation anxiety? Share below.

Stay Healthy out there❤️

Fun Friday!

Happy Friday😀

We have had a crazy fun day! It was beautiful and around 90 degrees. So I wanted to plan some fun outdoor activities.

This morning we went to the playground, before it got to hot. She had so much fun and conquered the chain ladder! She was super proud of herself🙂 She spent a lot of time swinging and singing🎤. The other kids loved her❤️

After lunch we went to my parents to swim. I have never heard so much laughter. She was jumping and splashing….me. Lol. I jumped in a few times. She told me to get out, as usual😂. She loves her big circle floating toy. She will sit on it and float forever. If I want to get in the water I will need my own pool. So I lay on my blanket and read it listen to my latest audiobook.

After swimming we cooled off watching her new favorite show Puppy Dog Pals. Then we ate some yummy cooked out burgers. Once home we will shower and relax with a Friday night/PJ movie night🥰

I hope all of you are healthy and well.

Welcome to all of my new followers 😁

My Health Update

Happy Thursday☺️

So I have been to my Obgyn and she went over all the results of my 2 ultrasounds and bloodwork. She recommended a total hysterectomy to completely solve my problems for good. I was like “Let’s do it”! Then as I was scheduling surgery they tell me I have to quarantine away from Chloe for 4 days before my surgery. Ok hold on a minute….that isn’t going to fly with Miss Chloe. She has only spent one night away from me and it did not go well. 4 DAYS!!!

So now I am looking at a different same day procedure instead. It has its risks like every surgery. It’s called a Uterine Ablation. It will remove the lining of my uterus, stopping all bleeding. It has an 88 percent success rate. I really hope it is successful.

Until surgery I have been put on different medications to keep bleeding at bay. Side effects stink. I have thrown up, had multiple migraines and been extremely exhausted. So next week I am meeting with my Dr to make final decisions on what I can do. If they can do away with the quarantine I would prefer the hysterectomy, but it’s still under Covid-19 guidelines.

I’m just hanging in there and thankful for my Dr who never gives up trying to get me better. She said my life’s challenging enough without extra junk. She’s got that right😁

I pray all of you are well❤️

Life is About to Get Busy😲

Life in our home is about to get BUSY! As I was helping Chloe get dressed this morning I get a phone call scheduling another therapy session for Chloe. I’m not complaining, but phew I gotta get a schedule book!

So far she has Behavioral 2 days a week, OT once a week, PT once a week and Speech once a week. Two of the therapies are an hour away. The waiting lists are crazy long, so I took what was offered. We are still wasting to see her psychiatrist for medication next week for the first time. I know I mentioned that yesterday.

So here is the important part if this post. I don’t wasn’t life to be chaotic for us, so how do I prevent that? No before lunch appointments. Chloe is not a morning person. She needs time to wake up and follow her routIne. If she is rushed she will get anxious and grumpy fast! She will even shut down. So all appointment are after 12. This will also be important when school starts. A few of the therapists will actually go to her school to treat her, so she won’t miss school time. That’s very important.

Until school starts I want her to have plenty of park play and swimming time between therapies. I am working on a new visual routine for her to use until school resumes. She hasn’t been receptive on trying to dress herself. She still sits there and waits for help. She has made strides in teeth brushing and hair brushing.

The OT is working on steps to dressing herself, so I’m staying on that with her. I am also rearranging her room to make learning zones for she and I to play at. She hasn’t wanted to do any arts and crafts this summer, so I am working on creating an art center in her room. I miss her drawing .

So as life gets busier we have to adapt, but keep things smooth as well.

I hope all of you are healthy and well❤️

Medication Overhaul!!

Chloe’s therapies are all coming together. The last one we were waiting on was speech and that one is ready to start as well😊

The only area we are waiting on is medication. The appointment has been pushed 3 times already! Chloe is struggling to with sleep 6 out of 7 nights a week. We are both dragging☹️ I told the psychiatrist office if it gets pushed again we are going somewhere else. Chloe has been on the same medication for sleep for 6 years. She needs something new.

I wish melatonin worked for her or another more natural alternative, but unfortunately she needs a little extra. She also needs to slow down during the day. You would think she would be tired during the day, but she just keeps going. I don’t know how she does it. I know I’m not doing so well. 🤪

Once her therapies all settle into permanent scheduling she will go pretty much 5 days a week! I’m not complaining. I’ve been looking forward to this and I am ready to roll. Chloe has enjoyed all the sessions she has had so far and sometimes doesn’t want to leave😮

So next Friday should hopefully be her medication appointment with the psychiatrist. Fingers crossed!